An extraordinary girl living with Trisomy 18
Vera's abundant newborn tuft of hair has almost completely shed off, revealing new strands perfectly formed in a cyclone. It's just a strange thought, that something so tiny shares the exact shape with a weather phenomenon of such mega proportions.
"A simple child, that lightly draws its breath, and feels its life in every limb,
What should it know of death?"
- William Wordsworth
Without weakness,
how do we find strength?
Without darkness,
how do we see the light?
Without sorrow,
how do we savour joy?
Without silence,
how do we learn to listen?
Without fear,
how do we learn to be brave?
Without death,
how do we treasure life?
Without loss,
how would we know what we have gained?
- Yin May
1 comments:
I can across your blog. Your little girl is beautiful. I didn't know is you wanted to talk. My little girl is 3 years old with full Trisomy18. She was born 3-17-05 and is still with us. Hoping you have lots of time with Baby Vera. Cathy & Annabel
annabelgrace.blogspot.com
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