29 April 2012

Respirionics Profile Lite Mask

Back then - so upset with the full face mask

 Three years ago, Vera tried on her first mask ever. I remember it vividly. We were at the hospital and the nurse took out the Respirionics Profile Lite. It was supposed to be the most suitable nasal mask to use as a full face mask for paediatric patients. But she hated it. We left the hospital with no mask solution.

The Respirionics Profile Lite (L size)
Today, at 4 years of age, we find ourselves back where we started, but in a good way. Vera is switching to the said mask, as her Resmed Mirage Micro which we absolutely love, is now barely able to cover her mouth and nose. Alas there is no bigger size of that. 

We've been slowly weaning her into the new mask, and this time, there isn't a hint of resistance. She knows whatever it is helps her sleep. 

For Vera, I will do anything to get her the best of what she needs. Perhaps because she can't tell me if something's comfortable or not for her. 

So here's our configuration: 

1) Mask - Respirionics Profile Lite (remouldable gel)
2) Headgear - SleepNet cap-style pediatric
3) Tubing - Breas, very soft, light and flexible
4) BiPAP - Breas iSleep 25

We hope to get her used to this mask soon. Because we'll soon have to sort out her other current issue - Reflux. And that might involve surgery for a re-fundoplication.











20 April 2012

Piggy & Teddy



This is a book well-loved by Daen. It tells the story of PiggyWiggy and Teddy, two friends who are quite the opposite.


But at the end, though they spend lots of time apart, they are still best friends.

I thought this would be a good way to have Daen understand his relationship with Vera. They spend most of the time apart - he goes to school and she stays at home, and they can't play and talk with each other.

So I got him these:


Piglet from Winnie the Pooh, and Teddy from IKEA. I tell him that the Piggy is Vera and he is the Teddy. He knows that for a fact now. And we act out how they love each other, and sleep in bed together, which in real life he doesn't do with Vera cos he'll be climbing all over her.

Once in a while, we catch spontaneous acts of 'sayang'. It really warms my heart. Through Piggy and Teddy, perhaps he'll know he have Vera with him, even when she's not.