Love And A Leap of Faith: 2nd Sleep Study

Our little friend is sleeping over at the hospital tonight.

She's recovered in time for her 2nd Sleep Study. The first one was done when she was 14 months old to confirm that she has Obstructive Sleep Apnea. This time, it's a titration - to find out the optimum BiPAP settings for her.

It took an hour for the sleep technologist to wire her up, in which time the angry little girl cried herself to sleep in Daddy's arms.

Besides multi-coloured wires, she's got some cute company.

The things this little girl has had to put up with...

I secretly love the fact that she never goes down without a fight : )

MEDICAL MIRACLES

1. Vera was born with a large PDA (13mm) which wasn't expected to close. It became a small one at 3 months and closed on its own at 6 months.

2. At birth, scans showed a duplex kidney and cyst. Subsequent scans showed kidneys to be normal.

3. Vera was born with hazy corneas, a film covering both eyes. They have cleared significantly on their own, and her sight has improved.

4. Vera is expected to "fail to thrive". Fed on the PEG, she is currently overweight on the Trisomy 18 growth chart.

5. Vera has little hearing in her left ear, and moderate hearing in her right ear. Yet she enjoys music, singing and listening to people talking.

6. Vera has Obstructive Sleep Apnea. With respiratory support from a biPAP machine, it is well managed.

7. Vera had seizures (myoclonic jerks). With seizure medication, it is being well controlled.

Love And A Leap of Faith

03 March 2010

2nd Sleep Study

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