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10 November 2008
Big Sister
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An extraordinary girl living with Trisomy 18
"A simple child, that lightly draws its breath, and feels its life in every limb,
What should it know of death?"
- William Wordsworth
Without weakness,
how do we find strength?
Without darkness,
how do we see the light?
Without sorrow,
how do we savour joy?
Without silence,
how do we learn to listen?
Without fear,
how do we learn to be brave?
Without death,
how do we treasure life?
Without loss,
how would we know what we have gained?
- Yin May
3 comments:
Alyssa's big sister wouldn't trade her in for the world. She loves to get right in and "mother" her. All the attention poured out on alyssa can't be bad right?
Vera is adorable. I am trying to find time to fulfill the request for pictures and a paragraph, are you still wanting to do that? I think it was a great idea, and thank you for your willingness to do so. As a newer mom on this T18 journey I would have loved to come across an experiencial journal like the one you'd like to make. Hope is such a powerful tool. Is your email posted or did you want the entry sent to here? To early in the AM for me to think clearly about the specifics of your request...anyhow love your blog about Vera I read it often.
Trish
Alyssa's mom
www.caringbridge/visit/alyssagraceshihadeh.com
Trish Yes, I'm still collecting picture and paragraph, but only Cathy has replied so far... well something is better than nothing to show doctors. Please email me at tham.yin.may@gmail.com I'm as new to this journey as you are, so we'll all learn from one another. Thank you all for stopping by in your busy lives to visit Vera!
Hi May. I hadn't intended to just not respond, but since Mallorie doesn't have an actual diagnosis, I don't think her story would fit. I think it's a really neat idea, and wanted to just say that. You are someone who gives such hope and your way of writing helps people see how full of joy your life is (even on not so joyful days). How Vera adds so much to your lives. Please don't think I just read your idea and thought it wasn't really great!
connie
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