23 April 2010


I have just received news of the passing of an 8-year-old Trisomy 18 girl. Her name is Annette. According to her mother, she died peacefully in her sleep.

Much as we enjoy each day with Vera almost as normal now, such news always serves to bring her diagnosis to the fore, and remind us to treasure each moment with her even more.

I'm going to play with her now.