We got the results of Vera's sleep study titration today.
The optimum BiPAP setting for her are:
Inspiration: 14
Expiration: 8
We'll need to up it to this from the current 12/6 over the next few weeks.
Now to the more exciting news: Vera is now 9 kilograms (at 2 years old). She's gaining about 200 grams per month. This is a little too much, so we're cutting back on her calories a bit. The target set by the dietician is that she does not exceed 11 kilograms by the time she turns 3.
She's also grown taller by 4cm since the start of the year and is now 74cm. With 2 hospital stays, this growth is hardly what we expected. It's probably due to the better sleep again!
9 comments:
just wondering why the dietician is saying that she shd not exceed 11 kg by 3 yrs? is it bad for her health?
just curious.
Well done, mommy and daddy!!! All that good love and care!!!
Shu-Yin,
Vera is following the Trisomy 18 growth chart. If she's 11kg at 3yo, she'll be already in the 90 percentile. It's easy to overfeed on tube feeding cos you can just pump the kid with milk even while sleeping. So we have to manage the weight gain so she can catch up with physical mobility and still support her own weight.
May,
Thanks for your explanation. I've been following your blog for quite sometime and I like the way you write and express your emotions. I also like following Vera's growth.
I think this is the 1st or 2nd time I commented. I am usually a silent reader of ur blog :)
Yea for Vera! Better sleep and better growth. How is Mummy feeling?
like a ball! the bun better come outta the oven soon!
thanks Shu Yin for yr comments! I never really knew how to "write" until I had Vera. So it's all thanks to her : )
http://mylittlevera.blogspot.com/2008/08/finding-my-voice.html
Beside getting enough oxygen and regular milk feeds... She has so much love that fills her real well.
Love to Vera
That's good news on Vera's growth :)
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