Love and a leap of faith: CNY 2025

How the years have flown by. Vera is now a young lady and Daen is now a young man. (And we are approaching our senior years.)

MEDICAL MIRACLES

1. Vera was born with a large PDA (13mm) which wasn't expected to close. It became a small one at 3 months and closed on its own at 6 months.

2. At birth, scans showed a duplex kidney and cyst. Subsequent scans showed kidneys to be normal.

3. Vera was born with hazy corneas, a film covering both eyes. They have cleared significantly on their own, and her sight has improved.

4. Vera is expected to "fail to thrive". Fed on the PEG, she is currently overweight on the Trisomy 18 growth chart.

5. Vera has little hearing in her left ear, and moderate hearing in her right ear. Yet she enjoys music, singing and listening to people talking.

6. Vera has Obstructive Sleep Apnea. With respiratory support from a biPAP machine, it is well managed.

7. Vera had seizures (myoclonic jerks). With seizure medication, it is being well controlled.

Love and a leap of faith

19 March 2025

CNY 2025

0 comments:

Labels

Do It Anyway

Life Lessons

In a Nutshell

Blog Archive

What is Trisomy 18?

MEDICAL MIRACLES

Inspiration

Life is Life