Love And A Leap of Faith: Vera is 6

We had a small gathering with close family, in contrast to the big do last year.
How do we know Vera was excited? Well, she slept at 4am that night!

Daen's Birthday wish for Vera: "I wish Chea Chea can learn to eat food." Unprompted.

MEDICAL MIRACLES

1. Vera was born with a large PDA (13mm) which wasn't expected to close. It became a small one at 3 months and closed on its own at 6 months.

2. At birth, scans showed a duplex kidney and cyst. Subsequent scans showed kidneys to be normal.

3. Vera was born with hazy corneas, a film covering both eyes. They have cleared significantly on their own, and her sight has improved.

4. Vera is expected to "fail to thrive". Fed on the PEG, she is currently overweight on the Trisomy 18 growth chart.

5. Vera has little hearing in her left ear, and moderate hearing in her right ear. Yet she enjoys music, singing and listening to people talking.

6. Vera has Obstructive Sleep Apnea. With respiratory support from a biPAP machine, it is well managed.

7. Vera had seizures (myoclonic jerks). With seizure medication, it is being well controlled.

Love And A Leap of Faith

24 February 2014

Vera is 6

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