Vera had a renal (kidney) ultrasound done today and everything looks okay. It is recommended that she gets one done every 6 months to look for Wilm's Tumor, something that commonly affects the kidneys of Trisomy 18 kids.
The first signs of something amiss in the kidneys is a higher than normal blood pressure. I'm happy to say that Vera's blood pressure seems to have come down to normal levels. They were on the high side in her first year, so we were on the lookout for hypertension. But the numbers are looking good now.
So it looks like the main issue left is her Sleep Apnea. We will be consulting with her respiratory doctor next week on the consequences of not using CPAP. Fingers crossed her breathing will get better as she grows and this issue will resolve itself.
03 October 2009
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I will be waiting and hopefully you can pass on the consequences of not using C-Pap. they have placed Annabel on oxygen all night as of two weeks ago. I have notice that when she comes off the oxygen her sats stay much lower. I also heard that over time they become dependant on this. I am so confused. I like to wait to see if her nights are going to be bad then place her on it. Praying that Vera will outgrown hers. And so happy about her renal ultrasound news.
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