Thanks to the heads up from Cathy, I now know that the O2 levels have to be not just in the 90s, but the high 90s, like 97-100.
It's night No. 2 and Vera seems to be hovering around 95. She's never hit 100 as far as I've seen. When she tosses and turns, it's in the lower 90s.
She's been asleep since 7pm so I'm keeping my fingers doubly crossed she will sleep till 6am. Meanwhile, I'm gonna get some shut-eye.
4 comments:
Praying that you get rest and so does Ian. Praying for Vera to have a good night. I wish you could keep the machine for more than 3 nights. I think at least a week would be what is needed. Sometimes Annabel has a better three nights and then a horrible 3 months. Also Annabel has most of her problems when she is sound asleep not moving. When they move supposedly the contact cannot be as good. You probably have a different machine than us. Our is a pulse ox and measures heart rate which we have low set at 60 and high at 180. Oxygen rate low is 90. Like today as she was falling asleep for her nap I could tell she was breathing so shallow so I hooked her up. She was fine for a while and then her heartrate rose and stay a good while at over 200 and oxygen down in low 80's. I normally don't have to do oxygen at nap because she doesn't get into that deep sleep. The maching has brought me great comfort. In the beginning I was up all the time but you learn to listen to if the alarm continues then we get up. Also at Vera's age we didn't suspect this problem. Annabel was not diagnosed until she was over 3 1/2. It is probably something that will ahve to be monitored. Also just recently was Annabel diagnosed with pulm hypertension. Something that you will I am sure have to follow with Vera. I am just in the early stages of learning these things. They oxygen is lots easier than the c-pap. We had maybe 3-5 nights of her trying to remove the oxygen out of her nose but found the tape to hold it on her checks and she sleeps well now.Sorry so long, but any informatin is helpful even if not happening right now. Think of you so often and thanking you for keeping us update. Sleep tight, sweet Vera.
Thanks Cathy this is very helpful. Yes I'm having a hunch that pulm hypertension may be something that creeps up down the road if nothing is done about the oxygen levels. Yes I agree sometimes the breathing for nap can be more shallow as she gets into pretty deep sleep.
the machine is so hypnotic..can't stop staring at the numbers changing and the pulse!
thanks for the reassurance that oxygen will be easier on Vera than the CPAP. glad Annabel is more comfortable on it.
May, I am so pleased that thus far, the news is so great. In my province in Canada, the government specifically excludes infants who suffer apnea form having an at-home monitoring advice. I call that cruelty.
Cathy, you make a good point. More research needs to be done on this. I heard someone suggest that the newborn apnea these kids often suffer either kills them or leaves them brain damaged. It is a terrible thought to consider that such a situation could further challenge them developmentally when it is so avoidable.
I suppose they are learing that sleep apnea affects older adults adversely too, so it is all new medicine I guess.
May and Cathy you are both such incredible mothers.
Barb
Annie's mom
I'm shocked that's the case Barb. i would have thought in Canada, treatment would be more advanced.
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