An extraordinary girl living with Trisomy 18
Over the weekend, a kite festival descended upon the park at our doorstep. We enjoyed the view of the high-fliers from our bedroom window, and also sat out in the field. Val and Bridgette joined us too. Vera enjoyed lying on the picnic mat, and watching the movement of the kites. It was pure and simple joy.
"A simple child, that lightly draws its breath, and feels its life in every limb,
What should it know of death?"
- William Wordsworth
Without weakness,
how do we find strength?
Without darkness,
how do we see the light?
Without sorrow,
how do we savour joy?
Without silence,
how do we learn to listen?
Without fear,
how do we learn to be brave?
Without death,
how do we treasure life?
Without loss,
how would we know what we have gained?
- Yin May
12 comments:
What a wonderful day!! Thanks for sharing the simple joys May.
Barb
amazing! what a beautiful outing! i'm sure vera loved every minute of it. she looks like she's getting more hair and starting to look older!
hey you saw nicer kites in the morning ya?
B
Pure simple joy - beautiful :)
Jane
A wonderful Day!Vera really enjoyed it.
Adeline
Beautiful colorful pictures. She looks so well, May. Praying for you and Ian and your rest.
so wonderful! I must make a point to drop by there next year! Good to see Vera out in the sun.
You do so much fun things! Was it overcast? because Vera doesn't look like she was minding the sunlight in her eyes, much. You look great, too!
May, there is a great new group on Facebook called "Faces of Trisomy". I know you are not a member but it might be worth joining or having Ian post about Vera. The group has just started and there are 222 members already. I understand it was formed in preparation for trisomy awareness month.
Such joy, looks like such fun for Vera, mom and dad. This day was the furthest thing from "sad".
Praying for many, many, many more colorful, fun and wonderful memories for your beautiful family!!!
Wish we were there too!!!
Jamine
Beyond beautiful!!!
Susan
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