I came across a posting on a motherhood forum that described Vera's journey as a "sad story".
Hmmm...is this the impression some people get from reading about her?
Which part of it is so sad? Perhaps if Vera had passed on (touch wood), I would understand.
But she's alive and kicking, overcoming the odds, surprising the disbelievers.
Or perhaps it's sad that we've been so unlucky to "kena" a genetically abnormal baby - every parent's worst nightmare?
The truth is, we experience joy and satisfaction more deeply than you can imagine.
Yes we will be sad one day. But surely not now!
11 comments:
Short and simple, they are sad because they have not been able to experience the joy and love that Vera brings to her sweet family.
Well said May. I have come to see these children as a well kept secret and a paradox. What seems like the worst there can be is the best.
We can only pity those who do not understand.
I am so happy that you share your joy with all of us. Thank you.
Barb
Annie's mom
You go girl!!!!! Brianna brought so much happiness into our life.....much sadness when she passed but I wouldn't change a thing....well maybe...I selfishly wish she could have been here longer with us. I miss her smiling face so much.
Well said May!
Alot of parents are not ready when suddenly put in this situation. They tend tho think we suffer a lot taking care of our children with special needs. A lady once said that I must be suffering just looking after Jonathan. I told her on the contrary. Jonathan is the lowest maintenance boy I have (apart from all those special equipment!) haha.
郭子曰:
悲? 阅者是悲!
乐? 行者是乐!
Sad story! I think the person who wrote that she feels that Vera's life is Sad, needs to look at the bigger picture!! As a parent of a child who lost her daughter to T18 more then 5 years ago, I would do anything to have her with us. Despite their battles through life sometimes. The joy, the love, the smiles, the small things. Mean more to us parents then us feeling like their lives are "SAD" Though my daughter only lived for a short time (on month) I cherished every moment of it. The ups, the downs, the sleepless nights. I was able to hold her, kiss her, hug her. Something I miss terribly everyday. So, Sad is not a word I would use to describe Vera. I read your blog often and think, "WOW, look how great she is doing, how she is thriving despite the hurdles and outcomes of all the others diagnosed with T18" I can say I am jealous at times. To see your beautiful daughter look so happy and healthy. Thank you for giving other parents out there hope. To know that they are not alone, and that miracles and prayers do happen! I am one of those believers.
A faithful follower
Kiley
USA Rhode Island
www.kileyandjason.blogspot.com
Take one look at the photo below this posting, and anyone could see... happiness, love, family. Is there no greater joy?
yup I have been given many comments like that too. So poor thing. So sad that your baby is like that. It actually gets on my nerves. What is wrong with them. Sigh. Can't they tell that we are happy n that's all that matters. The only sad thing is when he passes away. But from now till then, we have many happy moments together.
I would love it if people stop staring at us like we are freaks. There is nothing wrong with my son. Stop trying to tell me otherwise.
I am never sad whenever I read about Vera; To me she's a champion. I keep your blog in my Fav folder and will click on it whenever I need some encouragements. Thank you Vera, you never fail to uplift my spirits.
Ferny
very well said. i couldn't agree more.
It's not the symphathy that we need, just a blessing will do. We take Adel out with an oxygen tank often attracting stares, really, after a while it didn't bother me any more. What's more important is he's with us and he's happy.
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