After months of throwing up due to the tube irritating her throat, it's now OUT OF HER MOUTH. Finally, she can suck her hands and fingers all she wants. Finally, no more constant tape changing each time saliva soaks it up.We have her Speech Therapist Vasu to thank. He took one look at her and urged us to get her onto NG (nasal gastrostomy) tube without delay. The tube had already caused a ridge to form in her upper palate, like an inverted canyon! That would cause further problems further down the line, like stunt teeth growth.
It was traumatic to watch though. Vera cried her eyes out. Of course, who likes something thrusted up their noses and without warning? With time, she should get more used to it. We hope.
For those who know about my initial aversion to tube insertion, well, here it goes again. Another mental challenge to overcome!
3 comments:
I love the picture you posted on this one and the one before. She is so precious. She looks to be sleeping so peacfully. Do you have to insert the one in the nose? Annabel never had the one in mouth or nose, just the tummy when she turned 3yrs.She is looking so healthy and I hope things keep going well for your family.
Look at her... sleeping so sweetly... must have had a tough day... therapy and new insert.
Both your love and determination see Vera thru everyday
Yes we have to insert the tube ourselves at home. She's been weak and lethargic the last few days...maybe too traumatic for her. Fingers crossed she'll be better soon.
Thnaks all for all your encouragement. Keep your comments coming!
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