This is how we've been standing with Vera on a daily basis. It is not the correct position - as you can see, her butt juts out and she is hanging onto our hands like they were crutches.
This is a better position for Vera. Her teacher Jo gave me the idea to put her up against the wall to stand. This way she can learn to bear weight on her legs correctly.
I feel we need a stander for Vera, and will be seeking some advice from her physiotherapist.
I'm also trying out sitting her against the wall. It helps her tuck her chin in and keep her head down.
2 comments:
You continue to inspire many of us with your hard work with Vera. You have so many good ideas. Thank you for continuing to share with us. She is so precious. You asked about Annabel and she is ok. I guess I want to see her how she was a couple years ago. This year has been a hard one for her. The central line has made our life much more stressful. We are planning to attend the SOFT conference in the hopes that we can learn something more about Annabel's care. Being on the TPN/central doesn't seem to be a trisomy 18 thing. Even though Trisomy 18 kids do have GI issues they are usually more constipation type issues. I am always looking to get Annabel off of the TPN. Her weight is so much and she is uncomfortable.
What a big, beautiful girl Vera is becoming!!
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