27 July 2016

Leona is Four

In the world of Trisomy 18, parents lose their babies in utero, give birth to them stillborn, or lose them days or weeks after birth.

In Trisomy 18 terms, a child who makes it past her first year is a survivor.
Leona has just turned four.

To see that she made it past the initial years and is now thriving (you should see her lotus-root limbs), it's an awesome feeling.

To experience her grabbing fingers, joyful grins and pure gaze is a privilege.

The spirit is strong with this one.

Thrive on, little Lioness!