Dear Vera,
You are 14 months old. Today, you are happier, stronger, more responsive, more inquisitive and more aware - than ever before. You now have Mommy as your personal assistant by day - no, actually your grandma, greatgrandma and grandaunt as well. Your beloved daddy is all yours at night.
With the turn of the weather, you are feeling better and have been working hard on your movement. You turn left-right-left all day long, trying, still unsuccessfully, to get up on your tummy. You will get there. You are captivated by your own hands - you constantly put them in front of your face - turning them this-way-and-that to check out how they move. You are 'talking' more than ever. We love listening to you mutter to yourself.
Best of all, you have learnt to 'sayang' (Malay for 'be affectionate with') whoever is carrying you. Your previously clenched fists now open to stroke our arms and pat our shoulders! Not forgetting, the way you constantly stare at our besotted faces - intrigued by our moving mouths and the sounds they make. You cannot say a word, but your expressions and gestures speak volumes. You cannot crawl to me, but you've climbed all over my heart.
You continue to defy your death-sentence diagnosis. You continue to thrive, though you are not supposed to. You continue to show that you are far from 'incompatible with life'. You are more than we ever imagined you'd be. You are a miracle to me, every ordinary day.
Love,
Mommy
22 April 2009
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9 comments:
Happy Birthday, Vera! I am so glad she is doing well. I hope she continues to crawl all over her mommy and dadddy's hearts forever. Pryaing that she continues to defy this ugly thing called Trisomy 18. Can you tell I have begun to really hate it as of late???
May, this is beautifully written. She is a joy, and a miracle, indeed.
A successful 14th month to Vera! Amazing achievements and I believe more to come.
Thanks for sharing your beautiful thoughts. So positive =)
What a beautiful post May.
You are so insightful. Thank you for sharing your miracle.
Barb
Annie's mom
I have been following Vera's story and it is SO THRILLING to see her overcome all these hurdles, reach milestones, be just her lovely little self! You guys are amazing parents and it is so wonderful to see what a loved child can do (i.e. defeat all odds, being 'incompatible with life' to begin with). Yeah! Cheering for Vera and her family!
Love from Italy,
Jessica
was touched by your beautifully written post and am happy to see Vera growing, she is so sweet and cute!
happy 14 months, Vera. :)
Congrats, Vera has progress so much & all of us hope there will be more beautiful stories for us to share. Hugs & kisses to Vera.
just beautiful. happy 14 month little vera :)
Thank you May for the sweet comment on Brianna's blogsite. I've been following your family since learning of Baby Vera from Annabel's mother. Can I put a link on Bri's site to this one? I would like everyone to see what a beautiful girl you have. So glad you are staying home with her. We finally closed my business so that I could stay home and give Brianna 100% as well. Looks like Vera is doing some of the same physical therapy exercises that Brianna is doing. It will pay off. With Brianna it was like a light switch that turned on...all of a sudden so many things begin to click. Keep up the good work.
Brenda
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