I love it when
my daddy carries me
to the window, downstairs,
here there, everywhere.
I like to look at his face
and snuggle in his embrace.
12 January 2009
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An extraordinary girl living with Trisomy 18
"A simple child, that lightly draws its breath, and feels its life in every limb,
What should it know of death?"
- William Wordsworth
Without weakness,
how do we find strength?
Without darkness,
how do we see the light?
Without sorrow,
how do we savour joy?
Without silence,
how do we learn to listen?
Without fear,
how do we learn to be brave?
Without death,
how do we treasure life?
Without loss,
how would we know what we have gained?
- Yin May
8 comments:
So loved and protected by Dadi's strong arms...
Vera, you got the best Dadi!!
You're an awesome dad. You make the difference in Vera's amazing life. Bravo!
What a sweet picture and poem. I think about Vera often and am cheering her on.
love the photo! and Vera looks so cute gazing up at daddy.
Vera, you got the best dad and mum!!
Stay stong ....
Oh my gosh! I have you on my favorite but it hasn't been updating.For some reason it hasn't updated since Dec. 29th. I have been so worried and wondering if something had really gone wrong. I saw that you were visiting on Annabel's site just now and clicked on vera link and these updates popped up. I am glad to see these updates but praying so much for sweet Vera.
This sounds so much like what Annabel just went through after the storm. Her days were better than the nights but her sats at night dropped and I was so worried. If your heart says check it out don't question it. I became so frustrated with the drs. It was like they kept saying well she has lived this long... and this is probably how it will end... it is draining on us as parents. May I am praying for you and your hubby for strength and courage, confidnece and peace, etc. I have to figure how to get my link working. Thank you for visitng Annabel's site so now I know Vera is ok.
Hey dear,
How is Little Vera's flu getting?
Have it cleared off?
Is Mr Mucus gone for good?
Will continue to keep her in prayer everyday..
Words of encouragement to all the wonderful mummies and daddies out there...
When we face difficult circumstances, fear may cause us to wonder if God is aware of our situation. Jesus’ teaching assures us that God cares deeply and is in control. His tracking of our lives will never fail.
"I would tell the Lord my longings,
Roll on Him my every care;
Cast upon Him all my burdens,
Burdens that I cannot bear."
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