Love And A Leap of Faith: August 2015

This is how we used to practise standing with Vera.

Now Robocop Girl is here. Thanks to my mum for sponsoring this standing frame to help Vera stand tall!

Daddy helps put her in.

Music to help her stand for longer.

MEDICAL MIRACLES

1. Vera was born with a large PDA (13mm) which wasn't expected to close. It became a small one at 3 months and closed on its own at 6 months.

2. At birth, scans showed a duplex kidney and cyst. Subsequent scans showed kidneys to be normal.

3. Vera was born with hazy corneas, a film covering both eyes. They have cleared significantly on their own, and her sight has improved.

4. Vera is expected to "fail to thrive". Fed on the PEG, she is currently overweight on the Trisomy 18 growth chart.

5. Vera has little hearing in her left ear, and moderate hearing in her right ear. Yet she enjoys music, singing and listening to people talking.

6. Vera has Obstructive Sleep Apnea. With respiratory support from a biPAP machine, it is well managed.

7. Vera had seizures (myoclonic jerks). With seizure medication, it is being well controlled.

Love And A Leap of Faith

03 August 2015

Standing Frame for Vera

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