tag:blogger.com,1999:blog-5562020082504800049.post1936150857995831090..comments2022-05-24T22:52:14.487+08:00Comments on Love And A Leap of Faith: "Do Not Resuscitate"Yin Mayhttp://www.blogger.com/profile/18180684987679728756noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5562020082504800049.post-10751945064609888552010-11-04T15:41:35.514+08:002010-11-04T15:41:35.514+08:00Thanks Jillian.Thanks Jillian.Yin Mayhttps://www.blogger.com/profile/18180684987679728756noreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-9891378915719201422010-11-04T13:09:53.070+08:002010-11-04T13:09:53.070+08:00May, that's just terrible. Just because of her...May, that's just terrible. Just because of her diagnosis the hospital policy is a DNR? Especially since she was breathing well and had no immediate issues at birth. Hope Vera is home soon, take care MayJillianhttp://2monkeygems.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-69558059161891485292010-11-04T07:58:26.828+08:002010-11-04T07:58:26.828+08:00Yes it is the choice for some parents. Especially ...Yes it is the choice for some parents. Especially when they prefer not to prolong the agony and pain of a baby that has several severe issues at the present. In Vera's case she wasn't having any immediate issues (breathing well on room air, no need for immediate surgery), But the severity of the diagnosis "Trisomy 18" blanketed her regardless of her true current situation. Medical practioners need to realise that life expectancy can vary depending on the issues presented at birth, and advise parents accordingly.Yin Mayhttps://www.blogger.com/profile/18180684987679728756noreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-11955213630246322132010-11-03T22:49:00.815+08:002010-11-03T22:49:00.815+08:00I'm very surprised, I've always thought th...I'm very surprised, I've always thought that DNR is the choice of the parents, not the hospital/doctors.Jillianhttp://2monkeygems.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-370840587473032592010-11-02T19:50:05.504+08:002010-11-02T19:50:05.504+08:00So crazy that this can happen without our knowledg...So crazy that this can happen without our knowledge. Thank you Barb for your passion that changes so much due to Annie's life and journey.<br />May, good luck with operation.Cathyhttps://www.blogger.com/profile/00725698005835278265noreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-65155937238115554422010-11-01T01:47:35.987+08:002010-11-01T01:47:35.987+08:00I can very much relate. When our Anabelle was bor...I can very much relate. When our Anabelle was born with T18, not knowing the diagnosis before her birth, but banking on the idea that's indeed what she had (I refused the amnio) they had to by doctors ethics treat her as if she was any other baby with breathing issues at birth. Of course, after she was born, diagnosed, suddenly we went from, what to do to help her live, to leave her alone and let her die. I was furious. Angry is just not the word. I fought, yelled, screamed, slammed doors and walked out on doctors many times. They reasoning, though valid, was making me angry because they rather live based on statistics rather then the capability of each individual case. <br /><br />After 6 years, I am still glad I fought so hard. Giving my daughter every chance possible. Because sometimes, their is a miracle in every life. Your little one and so many others with T18 that have lived beyond exception is a test to that.<br /><br />Hugs to Vera<br /><br />Kiley Rodrigues<br />United States<br />Rhode IslandKileyhttps://www.blogger.com/profile/09503417265126874065noreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-11317442836530972732010-10-31T22:55:53.940+08:002010-10-31T22:55:53.940+08:00I am keen to know...what is the meaning of "u...I am keen to know...what is the meaning of "unacceptable morbidity"?Yin Mayhttps://www.blogger.com/profile/18180684987679728756noreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-29606728946841562622010-10-31T22:00:20.344+08:002010-10-31T22:00:20.344+08:00This is quite a discovery May.
An international c...This is quite a discovery May. <br />An international committee gathers every 4 years to revise best practice recommendations for resuscitation. In some cases, they recommend no resuscitation be attempted. Infants with confirmed trisomy 13/18 are in this category. The guidelines give the reason of "unacceptable morbidity."Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5562020082504800049.post-76666316778431732392010-10-31T18:39:24.564+08:002010-10-31T18:39:24.564+08:00hey... tis is really weird. i hv requested frm a f...hey... tis is really weird. i hv requested frm a few docs in the same hospital since rac's birth to allow me to sign the DNR but they hv always rejected me on the pretext tat there hasn't been a "grave situation". guess it really depends on which docs you meet. gd luck for the op, vera!<br /><br />with luv frm auntie rae & jiejie rachael.Anonymousnoreply@blogger.com