01 January 2014

Good News on Daen's Arthritis

In August 2012, Daen was diagnosed with Juvenile Idiopathic Arthritis (JIA), an auto-immune condition whereby an overactive immune system mistakenly attacks its own body. It was in both his ankles, and one swelled more than the other. 

In November 2012, we began a long-term course of treatment on Methotrexate (MTX) to counter it. It would suppress his immune system and thus hopefully reduce the swelling.

If he responded well to it, the swelling would subside in 6 months. If he didn't, we would have to move on to stronger alternative drugs. 

Thankfully, his body did respond to the MTX. 

In April 2013, the swelling had subsided. It has stayed away and this December 2013, his Rheumatologist reduced the dosage by half. 

So after almost 15 months of bringing Daen to hospital once every week for injections, we are now down to once every fortnightly. 

I would count this as our biggest blessing in 2013. Fingers crossed that in a few months time, we would be off the MTX altogether. 

He runs around like any other kid now. But I am fully aware how much worse we could have had the JIA. Some kids become wheelchair bound. 

There is no saying the JIA will not return in future once he's off the MTX. There are kids who are on injections for life. Well, for now, it's all good, and we'll be thankful we got the long end of the stick for JIA.

Catch me if you can!
"Dip dip bread" - He loves his bread dipped in soup.
He's crazy about dinosaurs, and we're in luck, because dino madness seems to have
hit Singapore with the opening of our first Dino museum in 2014. 

"I'm happy everyone is here" he declares - outing to the Science Center
with Bor Bor, Mai Mai, Javen and Savian.