30 October 2012

So Much Happening

Dear concerned friends and family who have been wondering about the lack of posting,

We're dealing with quite a lot right now regarding Daen's condition. It has spread, despite the steriod injection and oral anti-inflammatory medication. This has made me rather reticent of late so. There are a lot of decisions needing to be made regarding vaccinations and new injections. I am also channelling my time and energies into learning from other mums about how best to manage his arthritis. We are also bracing ourselves for the start of a new injection regime for him (once a week injections of Methatrexate).

Sorry if you're reading this while having your meal!
Meanwhile, Vera has come down with 4 consecutive days of persistent diarrhea (up to 10x/day) and has just had 2 days of high fever. At the A&E, I made the call yesterday to nurse her at home (we were already booked for a bed when I did an about-turn). We've completely cut her milk intake and put her on just rice water and pedialyte, SMECTA, Lactofort, and fever meds. She is better today but still not in the clear. Kudos to Beth for single-handedly nursing her while I went to work.

We are keeping our fingers crossed that the diarrhea is a viral infection that will go away, and not a long-term side effect of her seizure medication Epilim.

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